Dear Heart,
Well, our time together is coming to an end. I don’t know when, but you will soon be leaving me. I’m having a really hard time saying goodbye. You’ve been the center of my life for 41 years. Every decision I made had you factored […]
Random Q&A Post #1: Why do you need to ask for money?
Since I’ve been approved for transplant, I’ve started to receive a lot of questions about the process. As always, the goal of my blog has to been to use my story to create awareness about the struggles of living with a chronic illness and to […]
Random Transplant Update #1: The Long Story
So, I’m realizing that I’m not the most consistent blogger. One would think that sitting at a computer typing would be a nice sedentary activity for someone in heart failure. But with heart failure comes less oxygen and some days my poor under oxygenated brain […]
Happy Suckiversary to Me!
Over the course of my adult life, June has not always been very nice to me. I don’t have the best track record with avoiding hospitals in June. In college, I started getting severe atrial fibrillation in June and spent almost six weeks in the […]
And So Begins the Big Scary Heart Stuff…
This folder is a scary folder. I know that it looks pretty plain and inconspicuous. It didn’t try to bite me or cut my hand off or anything. But I’m going to need you to trust for me a minute when I tell you that […]
Dear Husband,
Congrats; you’ve survived two months of being legally bound to my medical mayhem! As we stood in that gazebo, you became more than just my husband. You officially became the next of kin of a chronically ill person; the person viewed as my primary caregiver, […]
Happiness Is Hard Work: Part 2
Six months of radio silence and here I am posting twice in a week. I just posted a blog titled “Happiness is Hard Work” only to realize afterwards that the only thing I’ve been working hard on for the last few weeks, the thing that […]
Happiness Is Hard Work
So, I realize now that I may kinda suck at this whole blogging thing…another six months has passed since my last blog post. I still want to write my blog. I still have A LOT to say about life as an adult congenital heart patient […]
Slammed Doors and Open Windows
“When God closes a door, He opens a window.” Everyone loves to look out a window in anticipation of what’s coming. Waiting for grandma to arrive, keeping an eye out for the UPS man with your Amazon package, watching for your loved one to come […]
Feisty and Mighty
When I first thought about starting a blog, my only real goal was for another heart patient, or anyone else with a chronic illness, to find something relatable in my story. I was so excited when one of my first blog posts, “But You Don’t […]